My husband has recently been diagnosed with Dysautonomia. Anyone ever heard of it?

My husband used to be a very robust, intelligent man. While he is still extremely intelligent, he is almost bedridden, has an unbelieveable amount of excessive sweating from head to toe, entire body itches, has rashes that have broken out over head, face and down back of neck. He is unable to walk more than 20 ft or less before being unable to continue and must sit down in a wheelchair. He had chronic aches and pains accompanied by muscle cramps throughout his upper and lower extremities. When excessively tired, is unable to speak and has difficulty knowing what to do such as sitting down. I have had to pat on the bed and tell him several times he needs to sit down before it registers. The doctor says it is a problem with the autonomic nervous system not sending complete communication messages from the brain, to the heart, and to other muscles. We are hoping to get him on IVIG thereapy soon. Would love to hear from others that may have this disorder. We live on prayers and faith

My husband has recently been diagnosed with Dysautonomia. Anyone ever heard of it?
A young woman I know, has just before Christmas was diagnosed with a disease related to Dysautonomia, but is still being tested, to get a clearer picture of what is going on.





I seriously know very little about this condition, except that Greg from the wiggles (yellow) was diagnosed with a related condition to Dysautonomia, Postural Orthostatic Tachycardia Syndrome (POTS), forcing him to retire from the wiggles.





What is Dysautonomia?


Postural Orthostatic Tachycardia Syndrome (POTS) , Neurocardiogenic Syncope, Mitral Valve Prolapse Dysautonomia, Pure Autonomic Failure, Multiple System Atrophy (Shy-Drager Syndrome) are some of the many disorders that involve a dysfunction of the autonomic nervous system, or Dysautonomia.


Our bodies have a complex task of maintaining a stable internal environment and respond appropriately to changes that take place in the external surroundings. This complex task is directed by the Autonomic Nervous System.





The autonomic nervous system manages most of our bodily systems, including the cardiovascular system, gastrointestinal, urinary and bowel functions, temperature regulation, reproduction and our metabolic and endocrine systems. Additionally, this system is responsible for our reaction to stress - the flight or fight response.


When our autonomic nervous system malfunctions, it is known as Dysautonomia. Other terminology that is used includes - Autonomic Dysfunction, Autonomic Failure and Autonomic Neuropathy.


For those afflicted with Dysautonomia, there is a range of symptoms that can vary. The prognosis may be one that calls for an abatement of symptoms, or an adjustment to living with a chronic impairment. The following statement, by Dr. David H.P. Streeten, provides an excellent summation of the impact of Dysautonomia:





While we are not constantly aware of the activity of the autonomic nervous system as we are of unusual sensory and motor events, the normal functioning of the autonomic nervous system day and night, from heart-beat to heart-beat, plays a largely unconscious but vital role in our livelihood. It is not surprising, therefore, that autonomic abnormalities, though they are usually more difficult to recognise than a severe pain, a sensory loss or paralysis of a limb, may be even more important in impairing the quality and even jeopardising the continuation of life.





Autonomic Disorders are classified into two divisions


Primary Disorders (e.g. Orthostatic Intolerance Conditions, MSA /Shy-Drager Syndromes)


Secondary, or Acquired Disorders (e.g. Diabetes Mellitus)





I have included a few links, and I hope things improve for your husband. And the therapy helps relieve some of his symptoms, especially the pain.





Take care and good luck
Reply:Sorry hun never heard of it, check this out. God bless you and have a safe happy new year
Reply:In the computer there is a Encyclopedias they might be able to help you out in a way.Good luck to you.
Reply:Try this website. It has some information that you may need.





http://www.dinet.org/





Also try http://www.ndrf.org/ and


http://ndrf.org/eve





My Prayers are with you.
Reply:i dont kno anyone who had this disorder (disease?) but ive heard a good bit about it. its a tough thing to deal with but it is able to b delt with. i wish you all the best of luck with your journey!